2020AnnualReport - Flipbook - Page 2
• 2020 ANNUAL REPORT • LESTURNERALS.ORG
LETTER FROM THE
It would be an understatement to say that 2020
was a year full of challenges and change. While our
daily lives were upended by the COVID-19 pandemic,
the Les Turner ALS Foundation’s commitment to
providing the best quality of care and support to
those affected by ALS during these uncertain times
never wavered. Spurred by the resiliency of people
living with ALS, the pandemic pushed us to be
nimble and resourceful and shift how we provide
essential information and offer vital services.
As an organization, the
pandemic made us stronger
and more forward-thinking.
You are receiving this report because you have
supported the Foundation as we faced these
challenges together. Through your generous
donations, sponsorships, volunteerism and overall
involvement, you have helped change the life of
someone living with ALS today or someone who will
be diagnosed tomorrow.
2020 started off with a record-breaking in-person
Hope Through Caring Gala on February 22 at
Chicago’s Radisson Blu Aqua with over 560 people.
Who could have predicted that it would be our last
in-person event of 2020? In March, we shifted to all
virtual programming for the remainder of the year.
Support Group meetings were moved to Zoom, and
we implemented a robust telehealth platform for
D O N AT E N O W
ALS Support Services Coordinator visits and clinic
appointments at our Lois Insolia ALS Clinic at the
Les Turner ALS Center at Northwestern Medicine.
Thanks to our loyal donors, overall donations and
fundraising events remained strong throughout
2020, including our Strikeout ALS 5K and 1 Mile
Run, Walk and Roll and the ALS Walk for Life, and
end of year giving broke recent records.
Our ALS research program at the Les Turner ALS
Center at Northwestern Medicine did not miss a
beat, with six groundbreaking basic science and
clinical research projects fully funded in 2020. In
addition, there has been tremendous headway in
new ALS treatments and clinical trials, including
rapid enrollment of patients in the breakthrough
HEALEY ALS Platform Trial.
As we write this, there is much hope that the impact
of vaccinations will help us return to a more normal
way of life. Our primary concern, as always, is
the health and safety of our extended Les Turner
ALS family, of which you are an essential part. In
2021, we expect that our major fundraising events
and services will be delivered in a hybrid model
for the future, with a mix of in-person and virtual
components to ensure the safety of all involved.
Because of you, we are a leader in comprehensive
ALS care, allowing thousands of people affected by
ALS to count on us. Thank you!
Together toward a cure,
Andrea Pauls Backman
Chief Executive Officer
funded to our Les Turner ALS Center at
Northwestern Medicine, which continues
to be at the forefront of ALS research
percent increase of our one-on-one
personalized visits with people and families
living with ALS in 2020 over 2019, using a
patient appointments in 2020. Thanks to
telemedicine, people with ALS were able
to have easier access to their doctors
and clinical care at the national and
and providers at our Lois Insolia ALS
Clinic at the Les Turner ALS Center at
need-based grants were awarded to people
living with ALS for equipment, respite care,
assistive technology, clinic transportation
and COVID-19 emergency aid.
visitors to our dedicated COVID-19
webpage, which provided those impacted
by ALS with the latest news, information
people benefited from the Foundation’s
community education programs.