2020AnnualReport - Flipbook - Page 9
• 2020 ANNUAL REPORT • LESTURNERALS.ORG
D O N AT E N O W
2 0 2 0 D I G I TA L M A R K E T I N G S N A P S H OT
As stewards of our communications and marketing outreach, your willingness to take action and share the
latest information on ALS treatments, fundraising events, advocacy issues and volunteer opportunities with
your network of friends, family and colleagues made a huge impact.
on our Facebook, Twitter and Instagram pages and an increase of
almost 10 percent in social media followers in 2020.
to our website, lesturnerals.org.
of our ALS Walk for Life Facebook Live event.
of new online resources: ALS Learning Series webinar program,
Foundation blog and a revamped Clinical Trials webpage.
SUPPORT SERVICES HIGHLIGHTS
A N AT I O N A L L E A D E R I N
M U LT I D I S C I P L I N A R Y C A R E
Our Lois Insolia ALS Clinic at the Les Turner ALS
Center at Northwestern Medicine, one of the
first multidisciplinary ALS clinics in the country,
continues to be a nationwide leader and is at the
forefront of clinical care and ALS research. In
addition to the multidisciplinary care that patients
receive at the Clinic, they work with the Foundation’s
support services team to receive individualized
support for themselves and their loved ones.
Studies show that patients living with ALS who
participate in a multidisciplinary clinic generally
report a high level of satisfaction with their care,
stay healthier and have improved health care
outcomes, something we’ve known since 1986.
Despite the pandemic and shift to telehealth,
patient appointments at our Lois Insolia ALS
Clinic increased by 13 percent for new ALS
visits and 5 percent for return ALS visits
in 2020, reflecting the great need in the
Enrollment in the breakthrough HEALEY ALS
Platform Trial, an innovative study designed
to accelerate the path to effective treatments
for ALS, commenced at our Lois Insolia ALS
Clinic in Fall 2020.
More than 400 people attended our annual
Les Turner Symposium on ALS in November.
The virtual day-long event was highlighted
by a keynote address from Sabrina
Paganoni, MD, PhD, Assistant Professor of
PM&R at Harvard Medical School and coprincipal investigator of the HEALEY ALS
More than 1,400 people benefited from
community education programs, including
our new bereavement support groups and
online ALS Learning Series, where we hosted
webinars on topics such as ALS clinical trials
and genetics and ALS.