ID-5184 Wonca Abstracts supplement L-Z 13-10-23 - Flipbook - Page 31
WONCA 2023 Supplement 2: WONCA 2023 abstracts (L–Z)
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Addressing quality and interoperability of data in general
practice
E/Prof Siaw-Teng Liaw, Jitendra Jonnagaddala, David Muscatello, Frederic Sitas, Liu Bette,
Valsamma Eapen, Professor Mark Harris
UNSW Sydney
Coupled with evidence-based guidelines and well-designed algorithms, digital real-world data (RWD)
from health information systems (HIS) will support personalised medicine and continuity of care
through the linkage of good quality information from multiple health facilities in primary and secondary
care. The key challenges to data-driven innovation are interoperability and the quality of digital data
and tools. Interoperability standards and data quality benchmarks exist, but the quality and fidelity of
compliance to them remain significant unknowns. Many studies, however, suggest compliance is low
and that RWD from general practice HIS are not fit for purpose.
Aim
To assess the compliance of MedicineInsight, a national repository of RWD from 600+ Australian
general practices, to interoperability standards and quality benchmarks.
Methods
We mapped MedicineInsight data to a widely used common data model (CDM) and assessed its
ability to aggregate 600+ disparate GP datasets to conduct ‘big data’ research using four scenarios:
opioid use for cancer and non-cancer pain; cardiovascular risk assessment and heart failure;
surveillance of infectious disease and vaccine use; and youth mental health. Shared open-source data
analytics and quality assessment tools were used in a secure digital health research environment at
UNSW Sydney.
Outcomes
Significant preparatory technical work was required to address architecture design, operating
procedures, security and governance challenges in preparing the datasets. This was compounded
by a change of MedicineInsight data custodian. The syntax (CDM) and semantic (SNOMED-CT)
mapping was relatively uneventful. The final results from the four scenarios will be discussed for
methods robustness and fitness-for-purpose of RWD. The implications for good clinical practice and
documentation for continuity-of-care in integrated primary care settings will be discussed. Working
through the Australian Health Research Alliance, a CDM approach will enable data linkage of RWD
from registries, biobanks, social media and wearables to advance the potential of personalised
medicine at individual and population levels.
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