2021 Champions for Cures and Care - Flipbook - Page 24
ABOUT THE ALS ASSO CIATION GOLDEN WEST CHAPTER
The Golden West Chapter of The ALS Association is dedicated to advancing access to essential
care and the urgent search for effective treatments and cures for ALS.
With philanthropic support, the Golden West Chapter funds global research, provides
professional care management services to families facing ALS, partners with multidisciplinary
ALS clinics and centers, connects people with ALS to clinical trials, increases ALS awareness,
drives important public policy initiatives, offers online educational programs and support
groups, and connects the ALS community together.
ENSURING ACCESS TO ALS CARE AND RESEARCH
The Golden West Chapter’s compassionate Care Services team provides professional, expert
advice and assistance for people living with ALS, free-of-charge. Our knowledgeable and
dedicated Chapter Regional Care Managers help individuals and families access the most
current information, resources, equipment, and specialists in order to maintain and maximize
the health of people living with ALS and their loved ones.
During the onset of COVID-19, the Chapter expanded to online platforms to provide
uninterrupted comprehensive care services. Now, more people impacted by ALS are attending
our support groups and rely on our loans of equipment and communication devices than ever
before. Our educational webinar series, ASK ME, has increased the frequency and access to
ALS specific topics and reached more people across the country.
The Chapter fosters scientific and clinical collaboration, and hosts regular online meetings for
medical professionals from more than 27 affiliated multidisciplinary ALS specialty clinics and
centers to share ideas. Our proven model of robust, proactive, multidisciplinary care, even
delivered via telehealth, continues to increase and improve quality of life for people living with
ALS, while also advancing the search for effective treatments and cures.
Powering the world’s largest ALS research program, the Golden West Chapter of The ALS
Association helps fund active projects in more than 150 labs around the globe. From harnessing
innovative ideas, to translating concepts to therapies – our collaborative “The world is our lab,”
approach drives leading discoveries by top ALS scientists everywhere.
FUELING ALS ADVO CACY BY SHARING YOUR STORIES
A nationwide network of dedicated volunteer ALS advocates work year-round to address
legislative issues and secure funding to improve the lives of thousands of people with ALS
and their families. Our efforts in California, Hawaii, and across the nation, inform and educate
elected officials and the public about opportunities to facilitate access to services, accelerate
drug development, and reduce barriers to care and research.
EMP OWERING AND CONNECTING OUR ALS COMMUNITY
Each year, the Chapter hosts many memorable and spirited community outreach events, to
provide people living with ALS and their families with the opportunity to gather, share, and
enjoy themselves online and in fun and casual settings. Our family-friendly activities – like
our Walk to Defeat ALS, Rides to Defeat ALS, ALS Golf Classic, and other celebrations like our
Champions for Cures and Care – empower and connect the ALS community, and inspire our
efforts and mission-priorities.